This is the drug my mom is on and has helped hold her cancer at bay until she can get a bone marrow transplant.
Here you can find the latest information on Margy's progress with MDS. We hope this will be a resource for patients, families, and friends dealing with Myelodysplastic Syndromes and other types of cancer. To subscribe to updates to this blog, click here: 
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Tuesday, August 18, 2009
Friday, August 7, 2009
Transplant Postponed
The day before the chemo for transplant was to begin, I was cleaning the house very vigorously in preparation for my mom's immune system to be challenged during her treatment. I got a call from the hospital which appeared on my phone as IPOP 911. OH NO. It was my mom's transplant coordinator. She told me I needed to come over right away. I ran over to the hospital and she told us that my mom's resistance to transplant (antibody count) was still too high to give us the best chance of success (donor engraftment).
While this is a huge disappointment to all of us, doors are still open. The hospital always has a trick up their sleeve. They are currently researching the ability to remove all bone marrow through radiation and chemotherapy and then give patients transplants with their half match donors. This has been the protocol for full matches. The good news is, due to medication my mother has been taking, the cancer is in remission and they would like to take the opportunity to learn more from the research before pursuing this option possibly sometime early next year.
Thanks to everyone for your support thus far. It has been quite a journey and as my sister put it in an earlier post, a roller coaster. I call it an exercise in patience. My mom is such a fighter and her strength through all of this has been inspiring. She is determined to combat this disease and is anxious to put this behind her. Your phone calls, emails, packages, visits, cards and flowers really uplift her spirits, so please keep them coming.
While this is a huge disappointment to all of us, doors are still open. The hospital always has a trick up their sleeve. They are currently researching the ability to remove all bone marrow through radiation and chemotherapy and then give patients transplants with their half match donors. This has been the protocol for full matches. The good news is, due to medication my mother has been taking, the cancer is in remission and they would like to take the opportunity to learn more from the research before pursuing this option possibly sometime early next year.
Thanks to everyone for your support thus far. It has been quite a journey and as my sister put it in an earlier post, a roller coaster. I call it an exercise in patience. My mom is such a fighter and her strength through all of this has been inspiring. She is determined to combat this disease and is anxious to put this behind her. Your phone calls, emails, packages, visits, cards and flowers really uplift her spirits, so please keep them coming.
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