I think it's safe to say that these last few weeks have been a roller coaster ride! With some last minute changes in the treatment plan, we are trying to refocus on the upcoming transplant. Last week it was finalized that Meredith will be the donor. The date is likely August 7. We won't know until about a week before the transplant. Margy is undergoing at least 8 rounds of plasmapheresis to remove antibodies that she developed to foreign B-cells. The goal is to remove enough of these antibodies before the transplant, lessening the chances of rejection.
So, things are underway! It has been a long time coming, and with great patience, we finally made it! Margy is in Baltimore now and started her pre-transplant protocol. Margy had her pheresis catheter placed on Tuesday and the operation went very well. Her first day of plasmapheresis was a bit rough, but they are making necessary adjustments to her treatment so that she will tolerate it better. Aunt Sandy is staying with Margy this week. She brought a whole cooler filled with homemade dinners, jams and baked goods. Thank you Aunt Sandy! The torch will be passed to Aprille when she arrives on Monday.
It's been a long journey so far and there is still a lot ahead. We thank our friends, family, and people we have never even met for your continued support and generosity. Please keep praying for a successful transplant!
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Here you can find the latest information on Margy's progress with MDS. We hope this will be a resource for patients, families, and friends dealing with Myelodysplastic Syndromes and other types of cancer. To subscribe to updates to this blog, click here:
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Resources
Support & Information:
Leukemia & Lymphoma Society
Blood & Marrow Transplant Info. Network
Cancer Care
American Cancer Society
Leukaemia Research: Myelodysplastic Syndromes
Mayo Clinic: Treatments for MDS
Caring4Cancer: Treatments for MDS
How to Help:
Become a Bone Marrow Donor
Donate Blood - Red Cross or Bon Fils
Patient Rights:
Patient Advocate Foundation
Nutrition and Diet:
Caring4Cancer: Eating Well
Eating Before, During, After Treatment
Mayo Clinic: How to Get Nutrition During Treatment
When Treatment Causes Eating Problems
Cancer Dietitian Blog
Cancer Recipes
Leukemia & Lymphoma Society
Blood & Marrow Transplant Info. Network
Cancer Care
American Cancer Society
Leukaemia Research: Myelodysplastic Syndromes
Mayo Clinic: Treatments for MDS
Caring4Cancer: Treatments for MDS
How to Help:
Become a Bone Marrow Donor
Donate Blood - Red Cross or Bon Fils
Patient Rights:
Patient Advocate Foundation
Nutrition and Diet:
Caring4Cancer: Eating Well
Eating Before, During, After Treatment
Mayo Clinic: How to Get Nutrition During Treatment
When Treatment Causes Eating Problems
Cancer Dietitian Blog
Cancer Recipes
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